As I mentioned in an earlier post, our lives changed with my husband’s diagnosis of Alzheimer’s Disease in August 2016. Where changes had, for the previous year, been less noticeable to those not with us everyday, they now were not only more noticeable but they also affected both our lives in different ways. So, as the changes in his condition became more consistent, they also became more distracting and harder to deal with from my perspective.
Tinker, Tailor, Soldier, Spy is actually the title of a best selling book from a few years ago and, while none of these professions apply directly to me, that title keeps rolling around in my head, reminding me of the many hats I must wear these days.
On any given day I may wear find myself wearing the the hat of housekeeper, cook, laundress, chauffeur, plumber, gardener, bookkeeper, financial advisor, banker, dresser, barber, lawn care, planner, life coach, and on, and on, and on.
How do I feel about all this? Frustrated at times, resentful at times, tired sometimes, and always worried, but also somewhat pleased that I am able to do all those things for someone I love. Actually I feel quite good about my ability to keep our life together in the face of the Alzheimer’s that has turned my husband’s world, and mine, upside down.
About this time I created what I call “Caregiver’s Rule #3” which is,
To keep life as simple as possible while adjusting to the changes around me.
Many days I feel lost and struggle to keep myself grounded. But there is usually a happy moment in the day that revitalizes me and keeps me going for another day.
And, that’s what I strive for…..one more day!
Care Giving - Risks & Rewards 